We are now home from a two day time away, the first day Ezzy was given some Botox injections at the first hospital, 1.5 hrs. away, to help with his very tight muscle tone and then after he was awake and ready to travel, we were off to Children's Hospital for eye and ear surgery. He did well both days, but is now peacefully resting, glad to be home in his own, comfty bed! :) (mom and dad are glad to be home too!) His eyes were a lot more red and "worked on" than we expected, but he is recovering well. We are trying to keep it low key for him these next days at home....even among his younger brother's cries of injustice in their room, (nap time) he is sound asleep! :)
Our sweet little guy sure is a trooper and we are so blessed with such a caring medical team that provides Ezzy with what his little body needs.
Thank you to all of you that prayed for a safe trip and safe surgery for our little guy. We are blessed by you!
Here is another praise, Ezzy is now 20 pounds!!! That is huge ( no pun intended :) for him, he has had such a hard time gaining weight and now in the last three weeks gained 2 whole pounds! He has been on a continual 12 hour feeding schedule, hooked up to a feeding pump. He has been getting a higher calorie Pediasure in his feeding tube. Seems to be doing the trick...our next prayer request is that he will start eating by mouth again. We have been taking a break from feeding him by mouth because of a painful mouth sore that was taking weeks to heal up, now that it is, I really would like him to eat by mouth in addition to his feeding pump. Thanks for your prayers! I am so thankful he is "beefing up"...he actually feels heavier! Nana and our Pastor's wife, have noticed his weight change too, we are all excited, because of his belly being content (eating at a slower pace) he is overall more alert and at peace...praise God! :)
Thursday, November 01, 2007
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