feeling understood...

Two days ago we went for a Neurology appointment. Ezzy has them every six months, a check up, making sure he is getting as much assistance as possible. We really like his Doc and I always come prepared with a list of questions to ask and advice to learn. This last trip was a nice "get away" for Edwin and I. We had the two boys with us, and the girls were at Nana and Papa's, thanks! :) It is always nice to have the three hour drive there and back to chat and visit...I am so blessed that he works so hard preparing to be able to take the day with his family and that his job is flexible, allowing him to have time with his family.

As we were strolling through the hospital, I had a feeling overwhelm me, hard to explain, but I will try. While waiting in the waiting room, many parents and kiddos were patiently waiting to be seen. My hubby is always so friendly and chats it up with the kiddos that are near us. I smile and look at the moms. We kinda do a "glance" at each other's child and then kindly look back at each other, a "understood" smile is exchanged and I pray for the right words to come out of my mouth if our encounter leads to a vocal interaction. You see, even though no words have yet been said, we both have already "talked", an exchange of feelings understood and accepted. The Lord does bring about times when I am able to share the blessing of Ezzy's life, but sometimes it is only a smile exchanged. It is a good feeling to be understood and not feel like everyone is starring at your son. Being there kinda feels like you are part of a "club".

When I am there at Children's Hospital, I see a lot of sad things, often I see sick little kiddos being so lovingly cared for by mom and dad...and then poof, I am reminded of how blessed we are to have Ezzy, who does not suffer from being sickly, he is not dying, he is not on the verge of anything "bad" any more than a kiddo running down the sidewalk. Seeing these families puts my whole outlook on raising Ezzy into perspective. I am thankful for the reminder of how blessed we are.

On a note of update: Ezzy is doing wonderful, alert and responding to life all around him more and more! He is "smiling" more and I love to see him respond to his beloved family members. He is a tiny little guy and so we need to look into how we can "beef" him up :) I have a long list of calls to be making in order to set appointments up for him. I am thankful for the grace of God, His perfect strength that re-fuels my soul as I take it one day at a time...

Ezzy playing in his stander...

Swim time for Mommy and Ezzy

Summer heat brings on MUCH pool time at Nana and Papa's! We enjoy time together splashing around....Ezzy loves to be in the pool, in small doses! :)

Just Ducky...

Ez Man recently had a blast playing in his stander! We had some fun playing with duckies in water...he would push them in and love our response of encouragement!
He is so very cute and I just LOVE this guy!!!
We just returned from some annual check-ups. I have a list of phone calls to make in regards to setting up future surgeries and appointments. I love this job and consider it a privilege that I am Ezzy's mom. Someone recently joked that I need a bluetooth to make the calls on the road... :) NA! I think that it is so funny when someone is "talking to themselves"!!! Who knows, maybe one day!! HE HE...

Anyways, the updates are good as far as his back...the doc said that there is NO deformity in his back...so that is a PRAISE! We still need to keep a close eye on his spine though and continue to stretch him and "help" him keep it as straight as possible. He still has a "slump" in his back, but when we straighten him, he seems to enjoy the stretch, so we are thankful for that! :)
Our little guy will need eye muscle surgery and glasses! How CUTE will that be?!
So looking into the options for glasses is on my list...
He also will need new ear tubes...fluid is still hiding out behind his ears and so since one tube fell out, he needs a new pair. We plan to do both surgeries at the same time, sounds good to me! :)

I am so THANKFUL for the doctors that care for Ezra...as his mom and his voice, I still have to be determined. I am thankful for God's strength that gives me the wisdom to know what to ask for and yet how much to "go for" in his care.
I was recently talking with his therapists; they are so encouraging to me in raising and caring for Ezra. I am so blessed to have their input and advice and yet their concerned ear that listens to me.
GOD is good.