We are now home from a two day time away, the first day Ezzy was given some Botox injections at the first hospital, 1.5 hrs. away, to help with his very tight muscle tone and then after he was awake and ready to travel, we were off to Children's Hospital for eye and ear surgery. He did well both days, but is now peacefully resting, glad to be home in his own, comfty bed! :) (mom and dad are glad to be home too!) His eyes were a lot more red and "worked on" than we expected, but he is recovering well. We are trying to keep it low key for him these next days at home....even among his younger brother's cries of injustice in their room, (nap time) he is sound asleep! :)
Our sweet little guy sure is a trooper and we are so blessed with such a caring medical team that provides Ezzy with what his little body needs.
Thank you to all of you that prayed for a safe trip and safe surgery for our little guy. We are blessed by you!
Here is another praise, Ezzy is now 20 pounds!!! That is huge ( no pun intended :) for him, he has had such a hard time gaining weight and now in the last three weeks gained 2 whole pounds! He has been on a continual 12 hour feeding schedule, hooked up to a feeding pump. He has been getting a higher calorie Pediasure in his feeding tube. Seems to be doing the trick...our next prayer request is that he will start eating by mouth again. We have been taking a break from feeding him by mouth because of a painful mouth sore that was taking weeks to heal up, now that it is, I really would like him to eat by mouth in addition to his feeding pump. Thanks for your prayers! I am so thankful he is "beefing up"...he actually feels heavier! Nana and our Pastor's wife, have noticed his weight change too, we are all excited, because of his belly being content (eating at a slower pace) he is overall more alert and at peace...praise God! :)
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8 comments:
So glad to hear this news. Will be praying for Ezzy.
Praise God for protecting little Ezzy! And I thought he was looking like his cheeks were fuller in the last few pictures.:) What a cute little man he is!!!!
Hope you are having a blessed weekend Liz!
So glad to hear Ezzy's surgery went well! And Yay for the weight gain!! It's fun to hear about his every little (but BIG) immprovements! Isn't God Great?!
Glad to hear everything went so well. Praise God!!
We are praying for you guys.
Blessings!
Elizabeth
hello dear friend,
thank you for your sweet comments and encouragement. i always find that when i read your blog I am reminded of what a true blessing our babies are, to us and to all who meet them. I loved the story of the little girl and what she said. thank you for trusting Jesus along this journey you're on...i am so, so glad that Ezra is doing well. I know that hospital stays and surgery are never fun, though! They do have perks, though, like free diapers and a 'maid' to clean the room! :):) Much love, dear one. May our Father lavish His love on you today.
Hi Liz,
Josiah and I went to the classes I told you about from the author of the book What to do about your brain injured child. WOW it was so good! We learned so much and we actually have some things to do to help Dillon. You should read the book and the book "How smart is your baby" by the same authors. I will email you my phone number is you want to talk about the book. It is AMAZING how much this help brain injured children. I wrote a little more on my blog about it.
~Tiff~
Just wondering how you are? Are all things well? gwen
It's good to hear he is gaining weight. I still can't believe Dillon weighs more than Ezzy now! How is he doing on that sugar thing you told me about? Do you see any improvements?
We see little improvements with Dillon with this new program we are doing. He is a little more alert, often we see him look at a black and white picture, and he is trying to support his head a little more now.
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