Two days ago we went for a Neurology appointment. Ezzy has them every six months, a check up, making sure he is getting as much assistance as possible. We really like his Doc and I always come prepared with a list of questions to ask and advice to learn. This last trip was a nice "get away" for Edwin and I. We had the two boys with us, and the girls were at Nana and Papa's, thanks! :) It is always nice to have the three hour drive there and back to chat and visit...I am so blessed that he works so hard preparing to be able to take the day with his family and that his job is flexible, allowing him to have time with his family.
As we were strolling through the hospital, I had a feeling overwhelm me, hard to explain, but I will try. While waiting in the waiting room, many parents and kiddos were patiently waiting to be seen. My hubby is always so friendly and chats it up with the kiddos that are near us. I smile and look at the moms. We kinda do a "glance" at each other's child and then kindly look back at each other, a "understood" smile is exchanged and I pray for the right words to come out of my mouth if our encounter leads to a vocal interaction. You see, even though no words have yet been said, we both have already "talked", an exchange of feelings understood and accepted. The Lord does bring about times when I am able to share the blessing of Ezzy's life, but sometimes it is only a smile exchanged. It is a good feeling to be understood and not feel like everyone is starring at your son. Being there kinda feels like you are part of a "club".
When I am there at Children's Hospital, I see a lot of sad things, often I see sick little kiddos being so lovingly cared for by mom and dad...and then poof, I am reminded of how blessed we are to have Ezzy, who does not suffer from being sickly, he is not dying, he is not on the verge of anything "bad" any more than a kiddo running down the sidewalk. Seeing these families puts my whole outlook on raising Ezzy into perspective. I am thankful for the reminder of how blessed we are.
On a note of update: Ezzy is doing wonderful, alert and responding to life all around him more and more! He is "smiling" more and I love to see him respond to his beloved family members. He is a tiny little guy and so we need to look into how we can "beef" him up :) I have a long list of calls to be making in order to set appointments up for him. I am thankful for the grace of God, His perfect strength that re-fuels my soul as I take it one day at a time...
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8 comments:
Refresing Liz. Thats how this blog made me feel.
There is such 'rest' when with other families who walk the same path as you. We will be praying for you in all your upcoming appts with sweet EzMan. Gosh, we love that little boy! It's amazing how praying for someone can cause such an emotional bond!
Liz, I so enjoy your perspective. Your family is such a blessing. I am glad you were able to have the time away and make the most of it. What a wonderful feeling to be in the presence of families that truly understand.
Thank you for sharing. Your family is in our prayers. I put a picture of your family in our prayer box so the kiddos can be involved in praying for sweet Ezra. In fact Anna loves to look at Ezra's blog with me.
God bless!
Elizabeth
I'm always so thankful when the Lord puts things in perspective for me. And I can only imagine the feeling of being understood by the other moms.
BTW thanks for such a sweet comment on my blog... I too think we are here to spur one another on:) Too bad it couldn't be in person, I have a Mom time once a month where friends get together at my place. Wish I could invite you.... but maybe will just have to wait until heaven to truly meet:)
Liz,
I guess you could say that we have already exchanged 'the look' - which I know much too well. I am glad to hear your words. They come straight from my heart. It's tough, yet comforting, when I sit in our Children's Hospital and look at the other parents. Some days I am thankful to be there when it feels like Ivey is 'normal' amongst her peers. She doesn't get the same stares. You are right, we have healthy kids and it is a true reminder to how fortunate we all are.
If you get any good advice about 'beefing' him up, pass them this way.
Love to you guys-
Gwen
Our son Brett was born with a Club Foot and required several surgeries and still has lots of Dr.'s appts, and PT appt.s. Every time we made the trip up to Shriners I came away so blessed. I know 'the look'. I understand the perspective gained from seeing the hurt other parents are going through. And FYI - whenever I'm blue, I watch your video of your daughter dancing with Ezzy and it picks me up. He will not faint and he won't grow weary! Thanks for sharing your heart! You and your family are such a blessing!
I LOVE HEARING ABOUT EZRA
What a wonderful perspective. I loved reading this...and you are blessed! Greatly!
I feel the same way about Rebecca, even though she is a 2 1/2 year old who is unable to roll over, sit, walk or talk, is blind and totally dependent on us for everything, I praise God that she is HEALTHY, has never once been sick in the hospital as so many other kids have. Despite our days of sadness, frustration, and questions of "why God?", I am so often reminded of how truly blessed we are to have her in our lives, and she is teaching us and other people so much.
Monika
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